A Fair Access Policy for the Saudi Biobank

In recent times, an increasing number of research biobanks have been established in many parts of the world, and medical research has increased as well ^[1]. Getting access to large numbers of samples and data is a key factor in the development of successful research, which requires collaboration between researchers and biobanks and among biobanks themselves and pharmaceutical companies ^[2]. However, this is fraught with logistical difficulties and ethical challenges, especially those related to medical confidentiality. A good balance between allowing access to samples and data and conducting medical research on one hand, and preserving the rights of the participants— especially protecting the confidentiality and privacy of donors and not harming them—are key factors in the success of biobanks ^[3]. Read more....